Lyn & Alan Gould; Founders of Butterfly Children’s Hospices
Hello, and thank you for taking the time to read our story. The Butterfly Children’s Hospices were set up after many years of our independent charity work in China. We saw first hand, just how desperate a situation many children and families found themselves in. And we were determined to help as best we could. And so the Butterfly Home was born.
Today we employ a variety of staff and volunteers in locations around the world and we are a registered international charity dedicated to providing palliative care to orphaned, abandoned and very sick babies and children in China. Some are only with us for a day. Others have gone on to have life changing surgery and have been adopted by loving families.
Since 2010 we have been working in co-operation with the Chinese government to provide loving care and treatment for children with life-threatening illnesses. No matter how small or how sick, we give every baby the love, care and medical attention they need.
We opened our first home in Changsha for up to eighteen abandoned children with life-limiting and life-threatening illnesses. It is our aim to become a beacon of palliative services for children and their families in China. We work in partnership with the government to create a sustainable model of palliative care that can be extended to different communities.
In 2013, using the model of care developed in Changsha, we founded another hospice in Nanjing, providing specialist nursing care for children who have palliative care needs, including those with complex illnesses and at end of life. We trained Chinese medical and nursing professionals to become independent in caring for these, and many more, children. This training was successfully completed in January 2015 and Nanjing Rainbow is now independently run by a Chinese organisation.
The Butterfly Home is a Happy Place
Even in the face of such heartbreak, we ensure that our Home is a happy place, where children can be children, and are shown love and care everyday. Although end-of-life care is a large part of what we do, we also have children, who thanks to our expert teams, go on to make full recoveries and are fostered, or adopted by loving families.
Like our children, no two days are the same at Butterfly; every child is evaluated and cared for in a way that is unique to them. Every child has the right to be known. To be cared for, and to be loved.
Our Vision & Mission
Our vision is to promote excellence in children’s palliative and hospice care in China (and other similar locations) through leadership, collaboration, advocacy, and education.
Mission Statement: That all children are afforded dignity and love in life and death.
Our Values and Beliefs
We believe that:
- Every child’s life is valuable, and should be valued, no matter how short.
- The voice of the child and their family underpins every action we take.
- Dignity in death should be afforded to every child
- Every child should be given the opportunities to achieve their full potential in life
- Every opportunity should be taken to educate and support families and assist them to make an alternative choice to abandonment of their child.