9 JunMeet little Charles
Charles has been a part of our family for a couple of weeks now. He has severe hydrocephalus, with a scan which shows a lot of brain damage. This manifests as loss of neurocognitive abilities, but his sweet personality is still very much present. Even though he cannot follow objects or track with his eyes, he always knows when someone is close by him. He gives us the dearest little smiles when he is spoken to or when he is touched.
Charles is having small feeds frequently. He vomits quite often and we’ve found that distributing his intake in this way helps him keep those important calories down. He’s gradually gaining weight, and settling in beautifully. Now we are working on some decisions about his future. Dr Caroline and the wonderfully supportive Baobei doctors are considering a shunt to reduce fluid pressure in his skull. We know it can’t reverse his condition, but our goal is to improve the quality of his life. On the other hand, we don’t want to put any precious baby though unnecessary and unhelpful procedures – so we have to make sure we have all the medical evidence and all the advice we need to make a good choice for him. We’re thankful for the skilled doctors who are investing into Charles’ life and we know the right pathway will become clear. Meanwhile, every day with this sweet boy is a gift, and we are all enjoying folding him into our family.