Board of Trustees and CEO
Zetao Zhang – CEO
Our CEO, Zetao Zhang, was appointed early in 2020 at a pivotal time for Butterfly.
With a very strong background in IT and business, Zetao has significant experience in Management Information Systems, strategic and business development and general management. In the pharmaceutical and medical industry specifically, he has experience in clinical research and trials, medical imaging and device, biotechnology and Quality Management Systems responsibilities within the CRO (Clinical Research Organisation) industry.
Personal experiences combined with his entrepreneurial spirit and passion for healthcare led him to co-found HPCAF (Hospice and Palliative Care Alliance of China Foundation) in 2017, a non-profit public charity with IRS 501(c)(3) status in the USA.
Since then he has been working in cooperation with the Chinese government and established a model adult palliative care ward in a major Beijing hospital, where he has been responsible for the support education, training & research; also Quality Measurement and Enforcement; Social Impact Ventures & Fund Raising.
Butterfly benefitted hugely from Zetao’s working as a Consultant with us for six months (pro bono) before his recruitment and appointment to the role of CEO.
Lynda Gould MBE – Trustee/Co-founder
Co-founder and former CEO, Lyn, is an experienced nurse, manager and leader with a career spanning nearly 40 years in the English health service (NHS). Lyn started to work in Chinese orphanages in 1994, and in 2004 she took early retirement from the NHS to dedicate her time to abandoned, dying children in China.
Together with her husband Alan, Lyn co-founded the charity and established the first Butterfly Home in Changsha in 2010, and in Nanjing in 2011, the first steps in pioneering palliative care for life limited children and their families in China.
Having lived in China from 2006 to 2013 Lyn has continued to travel from her home in the UK to China several times a year to continue developing and advocating for policy change and services for families with suffering children.
She is Vice-Chair of the International Children’s Palliative Care Network (ICPCN) and a frequent speaker at international events on the development of services, nursing and change management. She is sought after to provide consultation for developing services in resource poor settings.
In 2017 Lyn was awarded an MBE by the HM Queen Elizabeth II for her work in China.
Charles Sommer – Trustee Treasurer & Interim Chair (UK)
The company has supported Butterfly Children’s Hospice for some time and having met Lyn in person, Charles was keen to help further. He described the Changsha Home, which he visited in 2016, as “A place of great love.”
Prof. Li Chi-Kong (Hong Kong)
Dr. Li is a paediatrician trained in Hong Kong and his subspecialty is haematology and oncology. He was Chief of Service, Department of Paediatrics at Prince of Wales Hospital of Hong Kong from 2004-2014, currently Professor of Paediatrics at The Chinese University of Hong Kong.
He holds a number of senior posts in managing hospital services. He was board member of Hospital Authority of Hong Kong from 2012-2015, currently member of Governing Committee of Hong Kong Red Cross Blood Transfusion Service. He also actively involves in clinical research in children’s cancer with close collaboration with international groups and also centres in mainland China. In recent years, he also strongly promotes palliative care for children and is the founding Chairman of the Hong Kong Society of Children’s Palliative Care in 2017.
Gabrielle Quilliam (Australia)
Gabrielle has a background as a Registered Nurse and Midwife and has worked as a social change agent in local, national and international settings that include Emergency Relief, Community Education and Tertiary Hospitals. Combining her clinical skills, her experience as a foster carer for children with complex medical needs and her passion to make a difference, Gabrielle co-founded Hummingbird House as Queensland’s only children’s hospice.
Gabrielle continues to contribute to health care innovation through her role as a Board member with Health Consumers Queensland. Her commitment to authentic and comprehensive stakeholder engagement has resulted in outstanding human-centered community based outcomes that reflect her advocacy skills in the clinical, political, philanthropic, corporate and consumer sectors.
Gabrielle is passionate about identifying gaps in services that can be remedied through collaborative partnerships, resulting in creative and sustainable solutions that positively impact communities. She has an affinity with China through family and professional connections and feels privileged to use her experience and skills to support the life-changing care that is delivered through Butterfly Children’s Hospices.
Maggie James (Australia)
Maggie Yee-Ling James has over 16 years of experience in paediatric healthcare and is the Clinical Leader of Allied Health Oncology Services and Clinical Leader of Music Therapy Department at the Lady Cilento Children’s Hospital (LCCH), Queensland, Australia. Maggie leads a team of allied health professionals to provide holistic multi-disciplinary care to children with cancer and their families in addressing psychosocial, developmental and physical needs.
Maggie has a passion for creating a sustainable paediatric healthcare model engaging regularly with supporters and community in securing non-government funding for the creative therapy program at Children’s Health Queensland over the past 15 years. This program has grown to the largest paediatric music therapy program currently in the Southern Hemisphere. Maggie’s volunteer work includes International China Concern. She is passionate in collaborating with organizations, communities, families, staff and volunteers to maximising children’s quality of life regardless of their health conditions and needs.
Whilst completing her Master of Business Administration (MBA) in 2014, Maggie was recognised for her community efforts through the University of Queensland MBA Service to Community Award. Maggie has published in a number of journals to demonstrate the benefits of music therapy and regularly presents for national and international conferences on the topic of music therapy for children and creative use of therapy in paediatric healthcare.
Supporting our Board
Stephanie Withrow – Director of BCH US Inc.
She is the mother of three children adopted from China, is married to Doug, and works as a counsellor in her own practice.
Stephanie was on our board for 4 and a half years but now continues to support BCH in her role as Director of BCH US, registered as a not-for-profit in the United States of America.
Dr Anthony Herbert (Australia) – Adviser
Dr Anthony Herbert has been Director of the Paediatric Palliative Care Service at Children’s Health Queensland Hospital and Health Service in Queensland, Australia since 2014. He is also Adjunct Associate Professor in the School of Nursing at the Queensland University of Technology and a Senior Lecturer at the University of Queensland. His research focuses on children with life-limiting conditions and their families, focusing on clinical communication with this population and workforce development initiatives.
Dr Herbert leads the Quality of Care Collaborative for Australia in Paediatric Palliative Care and is a co-investigator on the Australian Research Council and Gilead projects being undertaken by the Paediatric Palliative Care Research Group. He has provided education in Paediatric Palliative Care in both Malaysia and Vietnam.
Dr Herbert presented at the Chinese Association for Life Care (CALC) Founding Assembly and at their First National Symposium “Children’s Palliative Care and Family Health Care Professional Services Committee” held at the Beijing Children’s Hospital held in May 2018. He is also on the Board of AusHeal – an Australian not-for-profit organisation directly supporting hospitals in the Democratic Republic of the Congo by providing professional health expertise, logistical support and developmental aid.